0

Data After Death

Organ donors can simply register at the DMV, but what about data donors? When we pass away privacy laws protect our personal data from being distributed. The major downside to this is big data research projects are hindered.  An example would be searching for patterns around shift work, premature aging, cancer and sleep impairment to name a few topics of interest. Scientific America reposted a story from The Conversation proposing how to deal with data after death.

Via The Conversation:

As researchers in medicine and ethics, we have found the rules governing data sharing in several countries to be inadequate. We think countries should create national databases of data donors, which could be used both for living patients to control how their medical data are used and shared, and for them to indicate whether they wish to continue sharing data after death.

People should be able to indicate which type of projects they wish to share data with, which parts of their medical records they are happy to share and whether they are willing to share data in a nonanonymized manner. They should also be able to give “broad consent” to future use of data if they wish.

Data donation after death should be discussed to avoid data dying along with patients, in turn leading to other deaths by setting back medical science.


Please vote for Limor Fried (Ladyada) for Red Hat’s Women in Open Source Award
Our Ladyada (Limor Fried) was nominated for Red Hat’s Women in Open Source Award! Please vote for her! Visit: https://www.redhat.com/en/about/women-in-open-source

Stop breadboarding and soldering – start making immediately! Adafruit’s Circuit Playground is jam-packed with LEDs, sensors, buttons, alligator clip pads and more. Build projects with Circuit Playground in a few minutes with the drag-and-drop MakeCode programming site, learn computer science using the CS Discoveries class on code.org, jump into CircuitPython to learn Python and hardware together, or even use Arduino IDE. Circuit Playground Express is the newest and best Circuit Playground board, with support for MakeCode, CircuitPython, and Arduino. It has a powerful processor, 10 NeoPixels, mini speaker, InfraRed receive and transmit, two buttons, a switch, 14 alligator clip pads, and lots of sensors: capacitive touch, IR proximity, temperature, light, motion and sound. A whole wide world of electronics and coding is waiting for you, and it fits in the palm of your hand.

Join 10,000+ makers on Adafruit’s Discord channels and be part of the community! http://adafru.it/discord

CircuitPython 2019!

Have an amazing project to share? Join the SHOW-AND-TELL every Wednesday night at 7:30pm ET on Google+ Hangouts.

Join us every Wednesday night at 8pm ET for Ask an Engineer!

Follow Adafruit on Instagram for top secret new products, behinds the scenes and more https://www.instagram.com/adafruit/


Maker Business — The strange world of low-margin online returns

Wearables — Liquid magic

Electronics — Diamonds may be forever… but components? Not so much.

Biohacking — Raspberry Pi Health Dashboard

Python for Microcontrollers — Python on hardware, a portal to a world of fun! #Python #Adafruit #CircuitPython @circuitpython @micropython @ThePSF @Adafruit

Get the only spam-free daily newsletter about wearables, running a "maker business", electronic tips and more! Subscribe at AdafruitDaily.com !



No Comments

No comments yet.

Sorry, the comment form is closed at this time.